Today is the very first World Lewy Body Dementia Awareness Day. 

Lewy Body dementia is the most common form of dementia you have never heard of. It is important when talking about dementia, that we think not just think of Alzheimers, but we highlight too rarer forms like Lewy Body Dementia (LBD).

LDB is a progressive neurological disorder characterized by the presence of abnormal protein deposits, known as Lewy bodies, in the brain. These deposits disrupt normal brain function, leading to a range of cognitive, motor, and behavioural symptoms. LBD often presents a complex clinical picture making it challenging to diagnose and manage. 

Symptoms of LBD can vary widely among individuals, but may include:

• Fluctuating cognition: People with DLB often experience fluctuations in attention, alertness, and memory.

• Visual hallucinations: which can be distressing for both the individual and their caregivers.

• Parkinsonism: DLB can cause symptoms similar to Parkinson's disease, such as tremors, stiffness, and difficulty with balance and movement.

• Sleep disorder: Individuals with DLB may act out vivid dreams during REM sleep, which can result in injuries to a spouse who shares the bed.

• Autonomic dysfunction: leading to changes in blood pressure, heart rate, and bladder function.

The Lewy Body Society are to be commended in being instrumental in founding a worldwide LBD awareness day.  Awareness is a vital if we are to ensure the best support and resources for individuals and families affected by the condition.

While there is currently no cure for LBD there are ways to make a difference in the lives of those affected:

• Raise awareness: Share information on social media, participate in local events, and engage in conversations about neurological disorders.

• Support research: Donate to organizations, like the Dementia Trust which is dedicated to developing more effective interventions.

• Offer practical support: Volunteer your time to assist carers, provide respite care, or offer emotional support to people affected and their families.

• Campaign for policies that promote early detection, improve access to services, and enhance support for carers. 

World LBD Day is more than just a day on the calendar—it's a rallying cry for awareness, understanding, and action. By coming together to shine a spotlight on Lewy Body Dementia, we can make a meaningful difference in the lives of millions of individuals and families. Together, we can work towards a future where LBD is better understood, treated, and ultimately, cured.